Understanding the patient experience
Chronic conditions increase the complexity of patients' lives, requiring them to make day-to-day decisions about their illnesses  . The best outcomes are achieved when there is empathy, when decision making is shared with patients, and when they are helped to self-manage.
- My Never-Ending Story: story and summary.
- Supporting self-management in patients with chronic illness.
Around one in six Australians might not be able to access, understand, evaluate and communicate health information in a way that helps them to maintain and improve their own health. Much of the information to educate patients is "too complex for the average person to understand, particularly for elderly patients" . Like all general practices, Health Care Home practices who "allow the time and structures to tailor communication appropriately will save time and effort".
PREMs and PROMs will help to understand the patient experience of care and their outcomes.